A Message in a Bottle

Have been co-leader on a (write the love letter to your teenage daughter) life coaching call for three Saturday mornings over three weeks. It’s been wonderful to stop and look around.

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Char dancing at a dance concert at the end of year.

Sit for a minute on life’s journey to assess where you are and how far you’ve come.

Maybe like me, your June is a shifting kaleidoscope.

My son graduated from high school, got a job, wants to buy a car — all in less than a week.

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Mom and Me and an Act of God.

My mother came and went, visiting from Chicago. We walked and talked. She offered unasked-for advice. She also offered unasked-for love. We picnicked in Riverside Park, walked the High Line, wandered in Central Park, took in a Broadway Show (“An Act of God with Jim Parsons).

One of my 15-year old daughters set off for 12 days of kayaking in Alaska last night.

The other daughter came home at 1 am last night, causing me to worry with a heart attack. (She was repentant. Blamed the West Side Highway traffic!)

Chris gathered some of his friends from First Grade for a reunion dinner party at our house last night. It was lovely. When I first met Chris, I was deeply attracted to his friends and the way he loved them. Funny, isn’t it? This is such a lovable quality — having nice friends. But Chris is slowing down a lot. Because of his Parkinson’s, he seems older or frailer than his friends.

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We went to the Museum of Natural History. We went to see Nature’s Fury. And then, as usual, lay under the big blue whale. Meditation. Ah.

When? Why? How did we all grow older? Why did my kids grow up? I told them not to! I said Stay Little! They were the cutest little darlings. Does all this mean I am ageing too?

The life coaching call reminds me to embrace the memories; celebrate the moment; choose joy; stay true; stay present. We make mistakes; we make amends. We hang in there. We have a family motto, “Jones Kids never give up.”

In the midst of my busy family life, the life coaching call is a breath — a slowing down — to take it in. Celebrate this moment. We have so much. Gratitude wins. Love wins.

I jot down my thoughts and dreams and hopes for my family. I send them like messages in a bottle. Hope they reach the shore. Hope my daughters and son (husband, mother, extended family, friends) know I love them. Believe that love is enough.

PS Remember to join me at the Irish American Bar Association’s Bloomsday June 16th! Another busy week. But this one will be less family-centered and more friends, work, writing-centered. Thank God.

Am also getting psyched for my trip in July to Ireland with the Dublin Writers Retreat.

 

Snow Day

not a flake has fallen and we are consigned home.
i like working, teaching, much better than staying home.
i find the work of housework endless and there is no pay.
which leads to resentment.
but for the work of work, i get thanked and paid.
and I interact with adults with whom i can make jokes.
the joking part of work is almost my favorite part.
that and being paid.
but maybe because of my husband’s illness and his slowness
or my children’s, i don’t want to call it laziness, but i will call it laissez faire.
i feel like i am always pushing a stone up a hill with housework.
and there is the haunting ernest hemingway question — did he have to clean house as much as i do? i may not be at the same literary level, but dang, if i couldn’t be a better writer, if i wasn’t a woman and didn’t have to clean so much.
i have said this a million times, but i need more household help.
and now that today is a snow day,
i have to be the household help.

For no reason, here are some pics from the Pasadena Rose Bowl parade this year. (I never got them up when we were in California a month ago, this New Year’s.) 

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I was cracking up. Every time this woman tried to take our pic, her finger was in the way.
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These two love each other.
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Loved the celebration of Spanish heritage and the cowboys in the parade.
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So many moving parts on the parade floats!
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We had sunny days in California. (Not snow days)

Parkinson’s and Depression: My Perspective

It should be obvious from my blog posts that my husband’s Parkinson’s Disease is not a death sentence. It is a “shit-this-sucks!” sentence. The disease has slowed down Chris’s ability to move and, perhaps, to think.

But it is not a stopping or a slowing down of the love he feels from and to and with other human beings.

Chris was diagnosed with Parkinson’s Disease about 12 years ago. His first symptom was stiffness in one arm. It didn’t swing much when he walked. He seemed to have an ever-so-slight drag in his step. More symptoms, such as a mask-like visage and stooped posture, have appeared since the time of his diagnosis. The years have not been easy.

Chris still thinks he got a better deal with a Parkinson’s diagnosis than a diagnosis of A.L.S. or some other fast-acting kind of cancer. He thinks Parkinson’s is not the worst disease.

Like Robin Williams, Chris is (and was) an extraordinarily talented comic and dramatic actor, conversationalist, and, yes, humanitarian. Chris is not acting that much anymore. He’s winning awards for his translations of Chekhov. He’s working on writing projects and directing plays. (He’s still a pretty good conversationalist and humanitarian.)

More importantly, he continues to excel at loving his children and his family. That is essential.

Now, about depression.

This is tough to talk about. Chris was briefly on anti-depressants (Lexapro, I think) for a malaise or depression that may have appeared around the same time as his Parkinson’s. He felt that the pills did not help. He felt that it was just one more damn pill to take. He has to take a lot every single day to keep his neurons firing.

The neurologist did not push these pills. He addressed my complaints about Chris’s symptoms by suggesting that they fit the criteria of apathy, not depression. And apathy, Dr. Ford said, is more annoying to the people living with the apathetic person than to the person who has the apathy. (And there was a bit of joking that I, as the complaining party, was the one who needed the antidepressants. Not the identified patient. But I declined.)

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Chris and his friend Dan are making a documentary about their life in the theater and with the disease of Parkinson’s http://www.theendgameproject.com/

Apathy, turns out, is not an uncommon side effect of Parkinson’s.

From my point of view (and I have encouraged Chris to write from his perspective), depression, apathy, and Parkinson’s Disease – these diseases do, in fact, totally suck. They deplete the quality of life. Because Parkinson’s is a chronic and progressive disease, the symptoms continue to worsen. The disease and its symptoms require a person to constantly fight inertia or apathy. Or depression.

And for some, perhaps Robin Williams, who carried a compounding of diseases, the heavy weight of the battle was too much to carry. (I am not judging. I am writing from my own point of view. I know that we — every single one of us — is fighting his or her own battles. I cannot judge. Only love.)

From my experience, the part of a human being that is capable of giving and receiving love does not seem to be affected by Parkinson’s Disease. Perhaps, one’s capacity for love is what makes us human. And life worth fighting for. (But, again, it may not be enough.) Is love, in fact, what makes life worth living?

Just for today. One day at a time.

When all else – body, mind — fails, perhaps, we should celebrate when love remains.

Beautiful – The Creative Process

The other night I saw Beautiful: the Carole King Story. It was an awesome rumination on the creative process. Want to be creative? You have to be dogged.

Sure, King (born Klein) was brilliant — the characters mention several times how she graduated high school at the age of 16 — but she was hard working. I love that. “Good things come to those who hustle.” And our girl Carole hustled.

I loved that the musical shows how creativity is a collaborative and a competitive process.

Mary Beth Coudal, blogger, and Anika Larsen, who plays Cynthia Wiel in Beautiful.
Mary Beth Coudal, blogger, and Anika Larsen, who plays Cynthia Wiel in Beautiful.

The cast was awesome. Everyone’s raving about how amazing Jessie Mueller is. But so is Anika Larsen as songwriter Cynthia Wiel, Carole’s gal pal, foil, and competition.

Now, from my lonely feminist perspective, I must point out that King’s songs really defined a generation of women finding joys in being a woman, “You make me feel like a natural woman!” (co-written by her partner, Gerry Goffin.) So fantastic — a real anthem and celebration of natural womanhood. I, for one, in this age of Botox and plastic surgery, would like to return to the beauty of natural womanhood.

natural womanI also wanted a little more about how Carole came to love herself and not just the ups and downs of her romantic and troubled love for her fellow songwriter and husband, Goffin. But this musical shows one slice of her life. To find out more I think I will have to read her memoir, A Natural Woman.

This musical is amazing. Carole King’s talent and output inspire me. Go. See it Sing along.

“Get up every morning with a smile on your face and show the world all the love in your heart.”

Disclaimer: Thanks to Beautiful and the Serino/Coyne group for the tickets. The opinions on this blog are always my own.

 

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Marriage and Work

While my husband has been away for a month, I’ve been extremely productive — embarking on a new job; completing writing and art projects; making new parenting connections. I wonder if my productivity has anything to do with being single, even briefly.

Was thinking about this when I took a walk in Riverside Park at lunch time yesterday.

Is it possible that relationships — particularly marriages — take up energy that might be (better?) spent pursuing art?

In my Henry James class in college we talked about this a lot. James never married and was incredibly prolific — coincidence? James advocated substituting sexual desire with creativity. He thought marriage was deadly to artists, particularly writers.

I remember feeling this after I split up from my first husband (I always feel like Zsa Zsa Gabor when I refer to my “first” husband), I remember wondering then: ‘If I had not spent all this effort in my marriage, to what heights could I have climbed.’

No one argues that relationships take work, but once free of that work, even for a month, the possibilities for other creative and, let’s face it, better paying, work emerges.