Archives for posts with tag: blogjune

Chris loves to watch the kids play sports, especially Hayden on the Little League field. He loves to teach them cards.

The Parkinson’s Disease makes some typical Dad things difficult, but he does them any way. He never says, “I can’t.”

He loves to cook, and he is a slow cooker.

His ability to show his love is slow too. He can’t help it.

Can any of us help who we are or what we get? I try to remember this when my husband falls asleep when I’m talking to him or walks away in the middle of a conversation. He leaves a mess worse than Linus in his wake. He refuses to leave his computer chums for real-life friends.

I try to remember who Chris used to be. I try to remember the quick flick of his wrist on the tennis court, the persistent phone calls to place our kids into pre-school, the lover of literature, the smooth dancer at the Broadway show’s after-party. He is still all of these things, but they are slower to show themselves.

I lean on and love other dads too. They might not even know how much I need them — my kids’ uncles, grandpa, friends. I lean on these father figures so my kids get the attention, love, support they need.

Fathering (and parenting) takes a village. Sometimes I feel I should do it all alone. Or I feel that that there is only this one person or one way to be a family. Or I feel I shouldn’t reveal our/my weaknesses.

But we are stronger in our broken places (I think that’s a book title). The shoulder bone Hayden broke when playing baseball is stronger at the point of its break, which happened to be the growth plate.

When we lean on one another, we are stronger. We reinforce the growth plate.

By remembering why we love someone and getting over the frustration of that challenge (if possible), there is an ease and a deep gratitude. And if that doesn’t work, there’s always anti-depressants.

I’d like to write more about this but I have to go and make a Father’s Day breakfast. I have to call my own father and say, Thank you!

I made a pilgrimage to Taizé about a year and a half ago.

I loved the amazing music, the worship three times a day, the time of silence in a large group, and the look of the church. Yet after a day or two monastic life was not for me.

It began to seem more like Outward Bound than a week in the French countryside. For example, you live in very tight living quarters in what are called barracks; your meal is ladled onto a plastic plate; your one utensil is a spoon; your seats in the tent are wooden benches that teeter and tip you over; it was unforgivingly cold.

I realized I needed to break free. I realized I have a restless spirit and that I find peace when I am on the go as well as quietly prayerful. I discovered a way out — a bus cuts through the campus. I snuck away during morning service and boarded the public bus for one Euro fifty cents. I took the bus until a petite ville beckoned. I hopped off and had an adventure.

I traveled to the monastery for a quiet and contemplative life. Yet, if truth be told, I found more treasures in the neighboring French countryside and the world beyond the gates.

While my visit to Taizé was not what I’d expected, not entirely contemplativethe memories of that time — of exploring neighboring villages and sitting on the floor in the church comfort me and remind me that I am not alone and that I am bound for adventure.

This is a bit of rework from my earlier blog post and from my travel blogging site: MBCoudal @ travelpod.  http://www.travelpod.com/travel-blog-entries/mbcoudal/1/1256052233/tpod.html#ixzz1PDNpyITx

Putting this spin on my life is exhausting. I was thinking about this as I scanned the Michael J. Fox article and looked at his photo on the cover of Good Housekeeping when getting my nails done yesterday.

Sometimes it’s not fine. Sometimes I want to go, “Bad deal. Need a do over. Not happy. Nope. Not working out here.”

I feel pressure — from Michael J. Fox? — to make the difficult seem easy and the abnormal seem normal. So what if my husband has Parkinson’s Disease? I should just grin and bear it (as Tracy Pollan seems to do. You don’t hear her saying, “It’s tough living with this dude who has Parkinson’s Disease.”)

Look, Michael J. Fox is an amazing person doing amazing stuff but not every person with Parkinson’s can perform at his level. Perhaps Fox’s nobility and engagement in life (and his more abundant resources of physical therapy and money and access?) make me and other families with Parkinson’s feel a failure. Sometimes, the disease actually kicks your butt and you are not happy and smiling and ready for the cover shot. You are not always looking up.

Occasionally someone will say to me, “I don’t know how you do it. He would drive me crazy.” And for that I say, “Thank you!” Because the people who say, “He looks great. Can’t even tell there’s anything wrong.” make me feel bad, like I shouldn’t notice his crazy behavior or at times embarrassing demeanor. And to those of you who are right now saying in your head, ‘Mary Beth, it’s worse for him.’ Yes, you’re  right. And I know that. And I’m sorry and I feel sad about that. I try for compassion on a daily, hourly, momentary basis. But this is my blog and my truth.

How positive should I be? How much is my positive attitude denial? How optimistic can any caregiver be? How encouraging should we be when faced with a disease in the family? And can we acknowledge in all honesty that times can be difficult?

And of course times can be great. And I look for and find joy. I try to follow my own rules to live by and find a deeper meaning to my life.

I do have a lot of gratitude for the people in my life, especially for my husband. That doesn’t mean that I don’t have a lot of frustration too. It’s a dance of honesty, encouragement and denial. And to all of this I say to Michael J. Fox’s smiling face on the cover of the magazine, “Everything’s fine, except when its’ not. I’m always looking up, except at times, when I look down. And life is made of moments of happiness and sadness; health and illness. It’s all part of the fabric of this life.”

  1. Hold a baby
  2. Go to the IWWG (International Women’s Writing Guild) conference at Yale http://www.iwwg.org/2011-summer-conference
  3. Take art classes with my father and sister in Vermont  http://www.black-horse.com/PDF/Art%20Event%20Flyer%202010.pdf
  4. Take H. and his friends to 6 Flags for his birthday
  5. Continue to work hard and have passion for my day job
  6. Take family to Ocean Grove, NJ, Jones Beach, or Shelter Island over 4th of July weekend
  7. Keep writing every day
  8. Toes in the grass and picnics in Riverside Park as often as weather allows
  9. Get a mani-pedi
  10. Join Improv or comedy class
  11. Meet with agent again on book
  12. Revisit my young adult novel
  13. Read all books for book clubs
  14. Keep working out every day — tennis, Pilates, biking, or running
  15. Visit a church a day once kids go to camp
  16. Update my resume
  17. Get more help for Chris and household management
  18. Research joining a writer’s room or applying for writer-in-residence program
  19. Befriend new families in kids’ new Fall schools/classes
  20. Prepare kids well for camp
  21. Have a party while kids are at camp
  22. Replace or do something about annoying kitchen cabinets
  23. Eat more fish
  24. Walk across the Brooklyn Bridge
  25. Comment on and read other blogs
  26. Tweet every day
  27. Do a reading of my work at least once a month
  28. Plan an international trip for me and the kids
  29. Get my bike tuned up
  30. Quit making lists
What’s on your Summer To Do list?

I locked up my bike. I was pretty nervous about the reading. I used to perform a lot. But it’s been a while. I do presentations for work, but that’s not the same.

Reading my own story, I could be judged, not just on my performance but on my material. I had signed up to read at the New York Insight Meditation Center Art Share. http://www.nyimc.org/ Not exactly the stress of Amateur Night at the Apollo, but still, stressful.

Just breathe, I reminded myself.

Buddhism and its practitioners are known for non-judgment. What a great concept — not judging.

I was reading a story that I knew to be funny, poignant, true. It was a mash-up of a few blog posts, one of which was about a mindfulness walk on a retreat.  As I walked, I took out my phone to snap  a picture and then it happened — I got caught in the web of social media — answering emails, texts, updating my Facebook, all while trying to meditate. I had gone on the retreat to get away from it all, but unwittingly plunked myself right back  into the thick of it all. http://mbcoudal.wordpress.com/2010/11/12/blue-cliff-monastery/

The reading went well. I got some laughs, some nods, some smiles.

After the reading, I felt that post-performance high — that arm-stretched-in-the-air pose of a gymnast who has just nailed her floor routine.

I bumped into an acquaintance who was about to teach a yoga class. She told me that my reading went well.

“Thanks,” I said, feeling grateful.

That’s when I realized the purpose of doing a reading or blogging or putting myself out there — is to turn acquaintances into friends. And to feel grateful.

I got on my bike. I rode home feeling proud and humble at the same time.

When I used to do stand up, I would tell myself 3 things right before I went on stage:

1. Be yourself

2. Have fun

3. It’s important

And I am trying to tell myself these same 3 rules at the start of every day.

I did not sleep well last night. One of the darlings came into bed with me at around 2. She’s nearly as big as an adult so she woke me. We have no air conditioning. It was  hot. I tossed and turned. Then I  moved to my daughter’s now-empty bed. I’d heard an antidote to insomnia is changing rooms.

As I walked in the hall, I heard the television was still on. My husband stays up way too late into the night, sometimes until 3 or 4. Then of course he falls asleep in the early evening hours when you’re talking to him (blame the Parkinson’s). Hearing the television just made me feel all sad and jumbled — my life, my restless night, my work. And I couldn’t wait until morning so I could dump all my thoughts, worries, dreams, into my journal.

1. Be yourself. Because there is a unique point of view based on a unique life’s journey. And for whatever reason, this is my journey. This is mine.

2. Have fun. Because I seriously believe that we are put on this earth to give and experience joy. The goal in life is to be happy, joyous, and free.

3. It’s important. Because I can easily dismiss my point of view, or expect that I am less than. But what I have to say is important.

I did fall asleep in my daughter’s bed and woke to write all this in my journal.

It could be the heat today. But everyone is so annoying! At work my colleagues expect all my work to be done last week. At home my kids yell at me to help them with homework. Genius takes time, my friends. You can’t expect a unicorn to work like a mule. Maybe I am just crabby.

I blame it on my husband’s Parkinson’s Disease. I blame everything on his PD.

And there is one other thing — one huge contribution to today’s overall sucky-ness. (If you know me, you know I’m rarely in this sucky camp. I’m usually in the glass-is-half-full camp. I stay happy because I have made up and followed my 7 Rules to Happiness and they usually work! But not today.)

Today’s pity party reached a crescendo when after racing my bike to get to one of my darling’s appointments at the orthodontist, I discovered I’d have  to cough up $295 dollars to replace each of my darling’s two lost retainers. That’s right. A set of lost retainers will set me back $590.

After the trip to the orthodontist I consoled myselt that when I got home, at least the house would be clean. See, Chris is extremely messy (blame the PD) (and admittedly, I’m no Felix Unger myself), but Wednesday nights are usually the one night when I don’t have to kick the house into some semblance of order when I get home from work. Because A., the cleaning person, works magic in our apartment on Wednesdays.

I was thinking ‘Tonite, the house will be clean and I will make myself some jewelry.’ I’d biked to the craft store and bought some beads. I like to be crafty. It’s calming, fun, productive. But A. couldn’t make it today. So I spent the night, cooking, cleaning, being generally pissed off. I didn’t make any jewelry. I just helped with homework and cleaned the kitchen.

Okay, I can’t end this post without admitting to a few highlights of my day too: Laying on the grass at Barnard with Liz at lunchtime and reading the kids Deenie  by Judy Blume for our Mother-Daughter book club before they went to sleep.

Tomorrow’s another day. I doubt it will suck. I will try to be grateful and I will try to be happy.

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